WG4 Stakeholder communication and dissemination
The objective of this Working Group is to attract more network members and make sure the results of network efforts are duly shared amongst members and also with the society. This group is in charge of setting up a mailing list and a webpage, as well as using integrated social media into the dissemination of more classical communication channels. The tools that this WG will use are the mailing list, webpage (that will include clear information on how to join, the general aims of the DARTER Action, Working Groups, and space to cover member’s interests and to upload newly created guidelines and SOPs). Lay explanations of the scientific objectives of the Action as well as, possibly, short explanatory videos will also be included to make this webpage accessible to patients and families.